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American Association of People with Disabilities
2004 Annual Report



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2005 Annual Report

2003 Annual Report

Mission Statement

The American Association of People with Disabilities (AAPD) is the nation’s largest cross-disability membership organization. Its mission is to politically and economically empower the more than 56 million children and adults living with disabilities in the U.S.

ADA Goals

Founded on the fifth anniversary of the passage of the landmark Americans with Disabilities Act (ADA), AAPD promotes public policies that advance the goals of the ADA: equality of opportunity, full participation, independent living, and economic self-sufficiency.


MESSAGE FROM AAPD’S BOARD CHAIR AND PRESIDENT & CEO

On behalf of AAPD, we are pleased to share some of the organization’s most significant accomplishments in 2004. As AAPD approached its 10th anniversary, 2004 was a year of notable growth, development and exposure.

We remain grateful to AAPD’s members, partners, funders, volunteers, staff and stakeholders for their tremendous endorsement of AAPD and its important programs. Thank you for your support of AAPD!

James Weisman
Chair, AAPD Board of Directors
Andrew J. Imparato
President and CEO, AAPD


2004 AAPD Board of Directors

Kathleen Behan
Arnold & Porter

Henry Betts, M.D.
Rehabilitation Institute of Chicago Foundation

James J. Billy

Judy Brewer
Director, Web Accessibility Initiative,
World Wide Web Consortium

Judy Chamberlin
National Empowerment Center

The Honorable Tony Coelho

Wendy Elliott-Vandivier

Richard Ellis
Secretary
Director, Federal Affairs, Verizon

Marilyn Hamilton
Vice President, Global Planning & Strategic Services, Sunrise Medical

The Honorable Judith E. Heumann

Vail Horton
Keen Mobility

Andrew J. Imparato
President and CEO, AAPD

John D. Kemp
Immediate Past Chair
Principal, Powers, Pyles, Sutter & Verville, P.C.

Edward Kennedy, Jr.
The Marwood Group

Frances Priester
Director for Consumer & Family Affairs,
DC Department of Mental Health

The Honorable Lynn Rivers

Debra Robinson
Speaking for Ourselves

Helen Roth
Vice-Chairperson

Cheryl Sensenbrenner

Margaret Staton
Treasurer
Founder, ELA Foundation

Michael Takemura
Hewlett-Packard Company

Fred Weiner
Special Assistant to the President for Planning, Gallaudet University

James Weisman
Chairperson
General Counsel,
United Spinal Association

Tony Young
Assistant Vice President,
Governmental Affairs & Workforce Development,
NISH


AAPD is ... advocating for disability rights

AAPD’s nonpartisan advocacy efforts in 2004 were based upon promoting the goals of the Americans with Disabilities Act (ADA): equality of opportunity, full participation, independent living and economic self-sufficiency.

2004 PRESIDENTIAL ELECTION COVERAGE

In the context of the 2004 Presidential election, AAPD submitted questions to the Bush and Kerry campaigns to determine the candidates’ respective agendas for people with disabilities. AAPD published their responses on its website, in its newsletter, and through its JFA listserv. The responses were also disseminated through the disability community and reprinted in several publications, and helped to educate voters on the policy agendas of the two candidates.

AAPD TESTIFIES

AAPD’s President and CEO Andrew Imparato testified twice before the United States Senate, before the Senate Aging Committee on the topic of retiree health benefits and before the Senate Commerce Committee’s Subcommittee on Science, Technology and Space on the topic of prenatal genetic testing technologies. AAPD board member Cheryl Sensenbrenner also testified at the latter hearing.

Reappointed by Senator Daschle in 2004 to the Ticket to Work and Work Incentives Advisory Panel (TWWIA) of the Social Security Administration, Imparato participated in a meeting of the Social Security Advisory Board on the topic of the definition of disability.

LEGISLATIVE ACTIVITIES

AAPD participated as part of broad national coalitions on the reauthorization of the Individuals with Disabilities Education Act (IDEA), and worked to support passage of Money Follows the Person legislation, the Medicaid Community-based Attendant Services and Supports Act (MICASSA), the Family Opportunity Act, the Genetic Information Non Discrimination Act, the Inclusive Home Design Act, the Civil Rights Act of 2004, federal hate crimes legislation, and a number of other bills.

Representatives of five national disability groups, with coordination from AAPD, met with Margaret Spellings, then Assistant to the President for Domestic Policy, to discuss longstanding issues and opportunities in disability policy for the Bush Administration.

As part of broad national coalitions, AAPD worked on two critical Centers for Medicare and Medicaid Services (CMS) policy issues: Medicare Prescription Drug Benefit proposed rule and the Medicare wheelchair benefit “in the home” restriction. Comments and concerns on the proposed rule were submitted to CMS about insufficient protections for the 13 million Medicare beneficiaries with disabilities and chronic health conditions. AAPD worked (and is continuing to work) on eliminating the archaic and unfair “in the home” restriction, which dictates wheelchairs and scooters are for use only inside of the home, denying individuals with disabilities access to mobility devices they need to be independent and active members of society.


AAPD is ... and creating strong bipartisan alliances

AMICUS BRIEFS

AAPD participated in an amicus brief in Tennessee v. Lane, working with a broad cross-section of the national disability community on a legal strategy for this important case.

When the Court ruled in favor of the Constitutionality of the ADA in the Lane case later in 2004, AAPD Board Member Tony Coelho and CEO Andrew Imparato appeared on CNN’s Inside Politics with Judy Woodruff to discuss the important victory for disability rights.

AAPD also participated in an amicus brief in Douglas Spector v. Norwegian Cruise Line, Ltd., arguing that the Fifth Circuit Court’s judgment to exempt cruise ships from the Title III accessibility requirements of the ADA be reversed.

We invite you to visit the policy section of the AAPD website for additional information on these and other 2004 advocacy activities.

EVENTS WITH 2004 POLITICAL CONVENTIONS

In conjunction with the two major political parties’ 2004 national conventions, and to mark the 14th anniversary of the ADA, AAPD and 16 additional national

organizations held events. The ADA Award Ceremony and Celebration was held in Boston at WGBH’s studios on July 26; the Lead On! Award Ceremony and Celebration of Progress in Disability Rights was held on September 1 at Time Warner Corporation in New York City.

These two events were opportunities for AAPD and the co-sponsors to thank public officials and elected figures from both parties for their dedication to the needs and concerns of people with disabilities and for being disability rights champions, and to present them with Lead On! Awards.


AAPD is ... recognizing today’s disability leaders

Paul G. Hearne/AAPD Leadership Awards
Established in the name of AAPD’s founder, this program continues Paul’s goal of cultivating emerging leaders to carry on the disability rights movement. The awards of $10,000 each are presented at AAPD’s annual Leadership Gala. 2004 awards were presented to:

Cheri Blauwet, a four-time Paralympic medal winner, medical school student, coach for youth with disabilities and founder of the International Institute for Disability Advocacy.

Alison Ashley Hillman, a psychiatric survivor and international human rights lawyer who works for the international recognition and enforcement of the rights of people with mental disabilities.

Kevin Long, co-founder of Global Deaf Connection, which works to assist Deaf people around the world to increase their social and economic self-sufficiency.

New in 2004, videos highlighting the recipients’ work were shown at the gala; these can be found on the AAPD website.

AAPD continues to track the paths of past recipients and their continued leadership efforts; in 2004, a “Where are they now?” article appeared in the newsletter and on the AAPD website.

A total of 40 awards have been made to date.

Henry B. Betts Award
Created in 1989, this program annually honors an individual whose lifetime work has significantly improved the quality of life for people with disabilities. It is named for Dr. Henry B. Betts, an AAPD board member, who had joined the Rehabilitation Institute of Chicago (RIC) in 1964, making it the base for his career as an advocate for people with physical disabilities and a rehabilitation medicine leader.The 2004 award was presented collaboratively with RIC at the AAPD Leadership Gala to Dr. Susan Daniels, a polio survivor and established leader in academia, government and advocacy circles. While Deputy Commissioner for Disability and Income Security Programs of the Social Security Administration, she laid the foundation for the landmark Ticket to Work and Work Incentive Improvement Act, and directed programs serving more than 11 million people with disabilities.

AAPD recognizes the Milbank Foundation for Rehabilitation and Mitsubishi Electric America Foundation for sponsoring the 2004 Paul G. Hearne/AAPD Leadership Awards Program, and the Prince Charitable Trusts, sponsor of the 2004 Henry B. Betts Award.


AAPD is ... and creating tomorrow’s leaders

AAPD’s DC Internship Programs
In 2004, AAPD continued to offer highly-sought internship opportunities that open doors for college and graduate students with disabilities and have proven that they can pave the way to long-term internships and employment prospects.

Congressional Internship Program
Established in 2002, this competitively-paid summer internship program makes it possible for college students with disabilities to work with Members of Congress at their Capitol Hill offices, where they are afforded a firsthand look at the political and legislative process. During the course of the summer program, interns are also introduced to business leaders, legislators, and disability rights leaders.

Congressional members who hosted the 2004 interns were Senate Majority Leader Bill Frist, House Majority Whip Roy Blunt, House Minority Whip Steny Hoyer, Representatives Danny Davis, Bernie Sanders, Major Owens and Chris Van Hollen, and Senators Sam Brownback, Judd Gregg, Tom Harkin and Ted Kennedy.

Information Technology (I.T.) Internship Program
The Microsoft-AAPD Federal I.T. Internship Program, launched in 2003, was designed for college students with disabilities pursuing careers in I.T.

Each competitively-paid intern works side-by-side with professionals in the I.T. areas of federal agencies.

Agencies that hosted 2004 interns were the Federal Aviation Administration, Federal Emergency Management Administration, Federal Highway Administration, National Science Foundation, Transportation Security Administration, U.S. Customs & Border Protection, U.S. Government Printing Office, U.S. Department of Agriculture, U.S. Department of Homeland Security, and the U.S. Patent and Trademark Office.

The Washington Center (TWC) Internship Collaboration
AAPD’s success and experience in offerings internships for college students with disabilities led to a new partnership in 2004 with TWC for Internships and Academic Seminars. This first year for TWC Program for students with disabilities made it possible for 47 students from more than 30 colleges and universities around the country to participate in this program in Washington, DC.

AAPD recognizes Independence Technology and the Mitsubishi Electric America Foundation for sponsoring the 2004 Congressional Internship Program,Microsoft, sponsor of the Federal I.T. Internship Program, and the U.S. Department of Labor Office of Disability Employment Policy for funding the TWC internship collaboration.


AAPD is ... taking a stand

The Disability Vote Project

AAPD’s Disability Vote Project expanded its coalition work with 37 national organizations in 2004, toward the increased voter education and nonpartisan voter registration within the disability community around the country in a presidential election year. The coalition continued its commitment to increasing the political participation of people with disabilities.

Significant Disability Vote Project coalition time was also focused on addressing the problems of polling place inaccessibility around the country.

The Disability Vote Project also continued its work in 2004 for accessible voting equipment:

Also significant in 2004:

Lastly, the Disability Vote Project expanded its work and communications with public officials in 2004. As example, several Secretaries of State and local election officials sought out AAPD’s assistance on HAVA implementation, and are now committed to acquiring one accessible touchscreen machine per polling place by January 1, 2006.

AAPD continued aggressive communications with election officials and public officials, and was asked to provide testimony before several State legislatures on disability voting rights and HAVA implementation.


AAPD is ... providing mentoring and job-shadowing opportunities

Disability Mentoring Day Program

In 2004, Disability Mentoring Day was officially commemorated on October 20th; in many locations, activities spanned the entire month of October. But Disability Mentoring Day was also the launching point for job-shadowing programs and for year-round mentoring opportunities for students and job seekers with disabilities (the mentees).

The number of mentees increased significantly in 2004 to more than 9,000, and Disability Mentoring Day activities happened in every state plus the District of Columbia, Puerto Rico, the U.S. Virgin Islands, and 14 additional countries.

The 2004 program also saw a 25 percent increase in the number of volunteer local coordinators. Mentees, who ranged in age from 8 to mid-50’s, with the largest percentage in the 18-26 year range, were from elementary schools, junior high schools, high schools, colleges, vocational schools, and vocational rehabilitation centers.

New York City was the 2004 Disability Mentoring Day national launch city. Mayor Michael Bloomberg presided as the honorary chair and participated hands-on by hosting a mentee.

As demonstrated by some 2004 participants, Disability Mentoring Day was successful at:

Goal-Setting and Hands-On Career Exploration
In Toledo, Ohio a student who was mentored at a vet clinic was inspired to apply to attend a vet assistant program at a local college.

Paving the Way for Long-Term Mentoring Relationships
In Princeton, West Virginia, Disability Mentoring Day activities included the participation of business representatives from nearly one dozen area businesses. Mentees met with business leaders and registered for follow-up mentoring assignments of up to six months.

Opening Doors for New Internship and Job Opportunities
“This was a very worthwhile experience – as a result, I got several job leads,the opportunity to do a long-term mentorship, and have also had a couple of job interviews.” Mentee in St. Paul, Minnesota

In Louisville, Kentucky, four mentees were offered year-long internships at the healthcare company where they had spent Disability Mentoring Day.

In Cavalier, North Dakota, a mentee was offered the opportunity for continuous job- shadowing until he graduates in June, and then to move into a full-time job.

Transitioning to year-round programming/Mentee Development
The Yakima, Washington, local coordinator has started monthly mentoring days for mentees, with the program combining career development programming and one-on-one ongoing mentoring.

In Richmond, Virginia, the Virginia Mentoring Works! Program used Disability Mentoring Day as the kick-off for its year-round mentoring program.

Removing Attitudinal Barriers
“I didn’t see someone in a wheelchair. I saw someone who likes to do what I do. In a workplace, it’s all about compatibility that makes a team.” Employer Mentor in Arkadelphia, Arkansas

Providing Unique Opportunities to Mentees
New York City was the national kick-off city for 2004 Disability Mentoring Day; Mayor Michael Bloomberg was the honorary chair and hosted a mentee.

In West Hollywood, California, mentees were invited to speak a few weeks later at the city’s Disabilities Advisory Board meeting, which was televised live on a cable station.

Disability Mentoring Day could not have happened or achieved successful outcomes if it were not for the participation of thousands of employer mentors, or without the commitment and coordination of the more than 225 local coordinators who, strictly on a voluntary basis, made the program happen in their regions.

2004 National Public Sponsor:


AAPD is ... recognizing champions

Justice for All ADA Anniversary Event

AAPD held its annual event to celebrate passage of the Americans with Disabilities Act (ADA), marking the 14th anniversary of that landmark legislation. It was held on July 22 at the U.S. Government Printing Office and hosted by The Honorable Bruce James, Public Printer of the U.S. More than 250 guests gathered to honor leaders who have helped to move the disability rights movement forward, and publicly recognize five disability rights champions with Justice for All Awards. Awards were presented to Congressional champions Major Owens (D-NY) and, Bob Ney (R-OH), who said during his remarks, “I believe modern machines hold the potential to make it possible for all citizens, regardless of disability, to vote secretly, accurately and independently.” Justice for All Awards were also presented to Hillary Shelton, Director of the NAACP’s Washington Bureau; Annette Kellermann, Senior Vice President, Accessible Banking, Bank of America, for the work she has done to ensure accessibility for the bank’s customers in its branches and at its ATM machines; and disability rights advocate and attorney Harriet McBryde Johnson.

AAPD also presented its first-ever Thomas Paine Award to Brad Williams, Executive Director of the New York State Independent Living Council.

Additional guest speakers were Democratic Whip Steny Hoyer, who spoke passionately of his long involvement with the disability community, and The Honorable Daniel Sutherland, Director of Civil Rights and Civil Liberties at the U.S. Department of Homeland Security (DHS), who relayed the agency’s efforts to promote disability rights and lead the way in hiring employees with disabilities.

As an additional event highlight, the class of 2004 AAPD Congressional Interns and Microsoft-AAPD Federal Information Technology Interns were honored, and all were presented during this event with graduation certificates.


AAPD is ... and inspiring increased advocacy

2004 AAPD Leadership Gala

The third-annual AAPD Leadership Gala was held on March 16th in Washington, DC, and emceed by The Honorable Tony Coelho.

The attendees warmly welcomed three special invited guests, all veterans from the war in Iraq.

Providing keynote remarks was Commerce Secretary Don Evans, an advocate and spokesperson for American business and supporter of people with disabilities. Also sharing personal remarks was Bill McDermott, CEO and President of SAP America, the event’s Lead Sponsor.

Highlights of the event were the award presentations. Three Paul G. Hearne/AAPD Leadership Awards were presented. Congressman Jim Sensenbrenner (R-WI) presented an award on AAPD’s behalf to Cheri Blauwet; Congressman Major Owens (D-NY) presented an award to Alison Ashley Hillman; and Congresswoman Betty McCollum (D-MN) presented an award to Kevin Long.

The prestigious Henry B. Betts Award was presented to Dr. Susan Daniels, who stated in her acceptance remarks, “Much work remains to ensure that people with disabilities have the chance to become a part of the American dream - the people who aren’t here are people who still need us.”

AAPD also presented its first-ever Linda Chavez-Thompson Award to its namesake, in recognition of her work within the labor movement to support workers with disabilities and their families.

AAPD recognizes the strong leadership of the event co-chairs, Mrs. Cheryl Sensenbrenner, Mrs. Susie Evans and Mrs. Deni Mineta.

AAPD recognizes the gala’s Lead Sponsor: SAP; Platinum Sponsor: Independence Technology; Reception Sponsor: National Structured Settlements Trade Association; and all sponsors.


AAPD is ... making a difference, fostering independence

Membership and Member Benefits Program

2004 was a milestone year for AAPD. The membership goal of 100,000 was reached. AAPD members are adults, students and other children with disabilities, family members and caretakers, and other disability rights leaders and advocates.

The growth in the membership can be attributed to strong AAPD Member Benefits program and members’ expressed needs for these benefits, particularly AAPD’s partnership since mid-2002 with the Digital Federal Credit Union (DCU).

Just in 2004, through this partnership AAPD members were granted more than $30 million in loans: Mobility Vehicle Loans for the purchase of adapted vehicles, and Access Loans for product or building modifications to assist someone with a disability. Collectively, more than 30,000 AAPD members have taken advantage of the credit union’s financial services.

In 2004, AAPD strived to further build and enhance its Member Benefits Program. AAPD launched a partnership with VictoryPlus to offer members a variety of affordable family healthcare and lifestyle benefits packages. This program offers savings on prescriptions, vision and hearing services, and diabetic medications.

AAPD also partnered in 2004 with AOL Netscape to offer AAPD members a lower-cost alternative for an accessible Internet Service Provider (ISP).

AAPDnews, AAPD’s quarterly print newsletter, continued to be a core AAPD member benefit. Each issue focuses in a nonpartisan manner on national disability policy and issues, along with updates on disability legislation, disability rights announcements and alerts, and AAPD programs and news.

Lead articles in 2004 centered around the national presidential election, including Q&A with the candidates regarding their disability-specific agendas.

AAPD launched a new, regular column to appear in every issue of AAPDnews. Each issue now highlights an executive with a disability who has made a significant difference in his or her organization.

“I just received my loan papers. I can’t wait for my van. I never thought I would be able to finance one. I am so happy!” AAPD member from Ohio


AAPD is ... and growing a stronger disability voice

The AAPD Website

AAPD’s website, www.aapd.com, has become a premiere location for information and resources for the cross-disability community. It offers current and updated news about legislative and disability policies and issues, AAPD programs, new member benefits, timely announcements, and an extensive list of links to other web disability resources.

The number of visits to AAPD’s website continued to grow in 2004, with upwards of 135,000 unique page visits in a single month. The site content is constantly updated with the latest disability and legislative news, resource links, Justice for All action alerts, AAPD programs news, and the latest AAPD member benefits.

The site is not just a significant source for current disability related news, but has also become a major research tool. A substantial increase, from 50 page views per month for current and archived news in 2000, to more than 25,000 per month in 2004, illustrates how important disability rights information is to AAPD website visitors.

www.aapd.com is also an effective adjunct for disseminating information about AAPD’s programs to individuals who can most benefit from them. For example, in just one month in 2004, information regarding AAPD internship opportunities alone generated more than 10,000 unique page views.

As the 2004 presidential election approached, the AAPD website provided important updates on the grassroots movement to get out the disability vote, along with timely information about accessible voting, voter registration, and voter education.

Justice for All Listserv

AAPD’s email listserv, Justice for All (JFA), continued in 2004 to disseminate action alerts regarding legislation, and articles of interest to the national cross-disability community. JFA defends and advances disability rights, shares information broadly, and calls people to action.

Through JFA, in 2004 AAPD disseminated information in a nonpartisan manner about national policy issues and the broader domestic policy and political debates that shape disability-specific priorities, with a strong emphasis on the presidential election and the disability-specific positions of the candidates.

AAPD recognizes sponsors of the 2004 newsletters, America Online and IBM, and AAPD website sponsor, IBM.


AAPD is ... thankful to its 2004 Sponsors

AAPD extends its most sincere gratitude to the following corporations, foundations, agencies and individuals, who sponsored the 2004 AAPD Leadership Gala and who provided programmatic and operational support. AAPD deeply appreciates their strong, demonstrated endorsement.


Financial Information
January 1 - December 31, 2004

Statement of Activities and Changes in Net Assets

Revenues and Public Support
Member Fees $153,810
Contributions $51,086
Contributions In-Kind $13,786
Program Revenue $16,721
Foundation and Corporate Grants $1,631,384
Government Grants $149,091
Other Income $2,066
Total Public Support and Revenue $2,017,944

Expenses
Program Services $1,729,266
Supporting Expenses $280,312
Total Expenses $2,009,578

Change in Net Assets $8,366
Net Assets, Beginning of Year $407,079
Net Assets, End of Year $415,445

Statement of Financial Position

Current Assets and Equipment
Cash and Cash Equivalents $181,971
Accounts Receivable $100,808
Unconditional Promises to Give $233,500
Prepaid Expenses $7,494
Fixed Assets $36,127
Deposits $11,068
Total Assets $570,968

Liabilities and Net Assets
Current Liabilities $155,523
Net Assets/Unrestricted $286,217
Net Assets/Temporarily Restricted $129,228
Total Liabilities and Net Assets $570,968


American Association of People with Disabilities (AAPD)
1629 K Street NW
Suite 503
Washington, DC 20006
Phone: (202) 457-0046 (V/TTY)
Toll-free phone: (800) 840-8844 (V/TTY)
Fax: (202) 457-0473
www.aapd.com

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